How long do cystic fibrosis sufferers live to? - how long do cystic fibrosis sufferers live
One of my friends suffer with him, and I want to know more about ABIT.
Saturday, February 6, 2010
How Long Do Cystic Fibrosis Sufferers Live How Long Do Cystic Fibrosis Sufferers Live To?
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Cystic fibrosis or cystic fibrosis, a hereditary disease. For the results of a defective gene are not transporting salt in certain types of cells in the lungs and the pancreas. It is a genetic disease most common in Western Europe.
Why a person should not cystic fibrosis?
Cystic fibrosis is a disease "recessive" autosomal, which means that both parents have a genetic defect is transmitted to the offspring. However, the child cystic fibosis if inherits two defective copies of the gene. It is a 1:4-chance that happens.
In the other three in four chance that the child inherits a normal gene copy and may be affected by cystic fibrosis. The exact mechanism is unknown, but the transport of highly weathered salt thickens the mucus in the airways. This makes the airways more susceptible to bacterial infections, which usually aureus and Pseudomonas.
How do I know if I have cystic fibrosis?
The symptoms are usually noted in the literatureRST year. When cystic fibrosis is suspected, the diagnosis can be confirmed by a special welding test. The doctor can make a referral to a center of cystic fibrosis in a hospital.
In the lungs, leading to repeated cases of pneumonia and respiratory distress. The pancreas is less able, digestive juices, which causes diarrhea and fat weight loss can produce.
The disease increases the salt content in the sweat of the patient. At high temperatures it can cause the patient loses too much salt and suffering heatstroke.
What can I do?
If someone is waiting for a parent, you should check to see if there are no cases of cystic fibrosis in her family. If so, they can be directed to your doctor for a genetic counselor. The consultant in a position to the chances that the child has the disease, when a decision can be taken to assess the continuation of the pregnancy.
Someone with CF should avoid unnecessary effort of the lungs, smoking for example. Lung exercises with a special mask (PEP) are also useful.
Looking to the future
Previously, the prognosis of patients with cystic fibrosis was very dark. But the treatment is getting better and now there is a 80 percent chance that children with CF live longer than 40 years.
Gene therapy holds great promise in the next decade, but in the future before it to conventional therapy.
What is cystic fibrosis treated?
The treatment is to maximize lung function for as long as possible.
The treatments include physical therapy and antibiotics to minimize the risk of lung infections. The complications in the pancreas can by controlling the diet of the patients are treated, and completing the pancreatic enzymes (eg Creon) added to food.
As a result of cystic fibrosis in some patients may also suffer from asthma, which can be facilitated by asthma inhalers.
Lungs or heart and lungs may be necessary if the lungsFunctioning deteriorates very significantly.
varied. Life expectancy is longer than it was. It may depend on how they develop with treatment and care, as they eat, how they respond well to antibiotics, in accordance with (often) pneumonia. They generally spend much time inside and outside the hospital. You will be treated to breathe better - nebulizers, physiotherapy, antibiotics and steroids. They also get enzymes to digest food. If you can not eat, sometimes stomach tube. Try to avoid, respiratory infections and colds. When the lungs are severely damaged, they may need a heart and lung transplantation. You can live in almost 30 years, but I think he is improving all the time. Why can not explain the parents of a friend, a little better, or a brochure on this topic.
usually 20 years later ... Let Daty 28 to 30 ....
Wikipedia has good information for SMEs in cystic fibrosis ...
Take a look ..
You know, there's simply no answer to this question. The median age of survival is now 36.5 years. These data are difficult to interpret. This simply means that half of those who died of cystic fibrosis died at 36.5 to the other half dies at 36.5 years. Can, in fact, do not say what age can expect to achieve.
Moreover, this applies only to patients who have registered in the CF treatment centers, compared to the CF Foundation. If anyone is "healthy" enough to live in May of traditional health care use is not only longer, but that does not include age of death in the statistics of the CTF.
I know some people with CF and 50 and even 60 are. I know a man who is 75!
One thing I know that CF is merciless. Your friend can look good on the outside, but only because he / she has learned to cope and to hide problems. When it's time to go there warning very soon. A patient may refuse to CF and that of an apparently healthy condition in a matter of weeks. Our daughter was "Looking Good" and ready to be discharged from the hospital when she suddenly pulmonary hemorrhage that they had killed. Live for today.
Join http://www.cystic-l.com to many adults who are disproportionately old to fulfill.
Check http://www.cff.org/AboutCF/Faqs/ answers to these questions and many others.
I am a CF patient diagnosed officially at the age of about 1 to 1968. I am now 39 and just over 2 years after transplantation BI side of the lungs.
Different mutations in the gene that causes CF if some patients are more advanced than others for lack of better terms. Some of us have more digestive and respiratory system than vice versa. Early diagnosis and commitment to the routine maintenance required is also important.
My cousin had CF and many years younger than me, but he died when he was about 12 if I remember correctly. I had many friends in the years FC of 10 years in the mid to late '20s. However, I met several CF'ers diagnosed until adulthood and is always very good. One of the other lung transplant recipients with CF, I know, is 44, when he received his transplant.
At this time of transplantation is the only thing that saves us, if the damage to our lungs about to kill us. Since we are (usually) for use at theEDICAL routine, which often has very good candidate for a transplant, but at the same time, there are inherent risk factors and CF infection after our whole body, so that the sinuses, etc. Pseudomonas port is very aggressive and difficult to keep under control . However, healing transplants in CF lungs, and basically gives us a second life.
Actual survival of lung transplantation is approximately 50% after 5 years, but I also met many beneficiaries who are 8-10 years old and still very good.
Your friend will have the opportunity to basically do what he / she wants within the limits of taking what your body / breathing. You have good days and bad days, and progresses the disease, it will tackle longer hospital stays for "tuning" (intravenous antibiotics and treatment of lung infections). Most of us are very creative and have a very bad (and sometimes very rough) sense of humor. As a rule, do well in school, the assumption that the regular participation in physical education unlessand even that is not beyond us, as the disease.
I graduated with honors (school night was full - 12) up to 18 hours per semester - while working full time and part-time work, I am a gentleman mgr. the world headquarters of a Fortune 500 company, where I my 17th Birthday party on Monday, I have been married for 9 years and usually have a fairly normal life.
I wish the best for your friend and I commend them for trying to better understand the disease. Do not hesitate, your friend - most of us are willing to ask the shares.
My cousin lived until the age of 21
I was dying patients from the age of 10 years, and I have to live with 40 patients something. Much depends on how these patients are included or how to care for themselves. My thoughts and tried his best friend.
Management CF
There is currently no known cure for cystic fibrosis. The symptoms are treated and relieved with medication, physiotherapy, enzymes, and a special diet. People with cystic fibrosis need a daily regimen of medication and physiotherapy and regular hospital billing.
In the year 1964 (when the Cystic Fibrosis Foundation was created), the life expectancy of children born with this disease, less than ten years. Today, thanks to progress in the world of medical research and a better understanding of the disease, the average life expectancy of a person with CF about 30 years. A cure for CF is now in sight. The Cystic Fibrosis Trust, said: "We are talking about when, not if."
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